{"id":3697,"date":"2024-02-06T12:09:20","date_gmt":"2024-02-06T11:09:20","guid":{"rendered":"https:\/\/cerenef.org\/?p=3697"},"modified":"2024-02-06T12:24:42","modified_gmt":"2024-02-06T11:24:42","slug":"journee-internationale-des-maladies-rares","status":"publish","type":"post","link":"https:\/\/cerenef.org\/en\/journee-internationale-des-maladies-rares\/","title":{"rendered":"Journ\u00e9e internationale des maladies rares"},"content":{"rendered":"<div data-elementor-type=\"wp-post\" data-elementor-id=\"3697\" class=\"elementor elementor-3697\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-cbed829 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"cbed829\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3cff0a7\" data-id=\"3cff0a7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a673846 elementor-widget elementor-widget-image\" data-id=\"a673846\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1920\" height=\"1081\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/RDD-2024_Support-Pledge-Strapline-1920x1080_FRENCH.png\" class=\"attachment-full size-full wp-image-3700\" alt=\"Journ\u00e9e internationale des maladies rares 2024\" srcset=\"https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/RDD-2024_Support-Pledge-Strapline-1920x1080_FRENCH.png 1920w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/RDD-2024_Support-Pledge-Strapline-1920x1080_FRENCH-300x169.png 300w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/RDD-2024_Support-Pledge-Strapline-1920x1080_FRENCH-1024x577.png 1024w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/RDD-2024_Support-Pledge-Strapline-1920x1080_FRENCH-768x432.png 768w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/RDD-2024_Support-Pledge-Strapline-1920x1080_FRENCH-1536x865.png 1536w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/RDD-2024_Support-Pledge-Strapline-1920x1080_FRENCH-18x10.png 18w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1fc010b elementor-widget elementor-widget-text-editor\" data-id=\"1fc010b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>La Journ\u00e9e Internationale des Maladies Rares<\/strong> (Rare Disease Day), c\u00e9l\u00e9br\u00e9e chaque ann\u00e9e le dernier jour de f\u00e9vrier, aura lieu <strong>le jeudi 29 f\u00e9vrier 2024.<\/strong> De nombreuses initiatives inspirantes seront organis\u00e9es \u00e0 travers le monde. <strong>Cette journ\u00e9e vise \u00e0 sensibiliser le public et \u00e0 mobiliser un soutien accru pour les personnes touch\u00e9es par des maladies rares.<\/strong> \u00c0 travers divers \u00e9v\u00e9nements organis\u00e9s dans de nombreuses r\u00e9gions, la communaut\u00e9 m\u00e9dicale, les associations de patients, les chercheurs et les d\u00e9fenseurs des droits unissent leurs forces pour mettre en lumi\u00e8re les d\u00e9fis auxquels sont confront\u00e9es les personnes atteintes de maladies rares. <strong>Ces manifestations permettent de partager des connaissances, d\u2019explorer de nouvelles avanc\u00e9es scientifiques et de discuter des progr\u00e8s dans le domaine des maladies rares.<\/strong><\/p><p><strong>CERENEF, centre de r\u00e9f\u00e9rence des neurofibromatoses France, sera pr\u00e9sent sur le stand d&rsquo;information consacr\u00e9e \u00e0 cette journ\u00e9e (gratuite et ouverte \u00e0 tous), au sein de l&rsquo;h\u00f4pital Henri-Mondor (AP-HP).<\/strong><\/p><p>Jeudi 29 f\u00e9vrier 2024 de 14h \u00e0 17h,<br \/>Hall Principal RDC Haut (Porte 1),<br \/>Henri-Mondor Hospital<br \/>1 Rue Gustave Eiffel, 94000 Cr\u00e9teil<\/p><p><a href=\"https:\/\/www.rarediseaseday.org\/\" target=\"_blank\" rel=\"noopener\">En savoir plus sur le rare disease day<\/a><br \/><a href=\"https:\/\/esmaramaladiesrares.fr\/save-the-date-journee-internationale-maladies-rares-2024-a-henri-mondor\/\" target=\"_blank\" rel=\"noopener\">En savoir plus sur la journ\u00e9e \u00e0 l&rsquo;h\u00f4pital Henri-Mondor (AP-HP)<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-e1d8678 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"e1d8678\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-46aa6b3\" data-id=\"46aa6b3\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-60e7e77 elementor-widget elementor-widget-image\" data-id=\"60e7e77\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"800\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/rare-disease-day-cerenef-square.jpg\" class=\"attachment-full size-full wp-image-3702\" alt=\"Journ\u00e9e internationale des maladies rares 2024\" srcset=\"https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/rare-disease-day-cerenef-square.jpg 800w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/rare-disease-day-cerenef-square-300x300.jpg 300w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/rare-disease-day-cerenef-square-150x150.jpg 150w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/rare-disease-day-cerenef-square-768x768.jpg 768w, https:\/\/cerenef.org\/wp-content\/uploads\/2024\/02\/rare-disease-day-cerenef-square-12x12.jpg 12w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>La Journ\u00e9e Internationale des Maladies Rares (Rare Disease Day), c\u00e9l\u00e9br\u00e9e chaque ann\u00e9e le dernier jour de f\u00e9vrier, aura lieu le jeudi 29 f\u00e9vrier 2024. De nombreuses initiatives inspirantes seront organis\u00e9es \u00e0 travers le monde. Cette journ\u00e9e vise \u00e0 sensibiliser le public et \u00e0 mobiliser un soutien accru pour les personnes touch\u00e9es par des maladies rares.&hellip;&nbsp;<\/p>\n<div class=\"read-more-wrapper\"><a href=\"https:\/\/cerenef.org\/en\/journee-internationale-des-maladies-rares\/\" class=\"button button-secondary\" rel=\"bookmark\">\u279c Read more<span class=\"screen-reader-text\">Journ\u00e9e internationale des maladies rares<\/span><\/a><\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"neve_meta_sidebar":"","neve_meta_container":"","neve_meta_enable_content_width":"off","neve_meta_content_width":70,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":"","neve_meta_reading_time":"","footnotes":""},"categories":[8],"tags":[],"class_list":["post-3697","post","type-post","status-publish","format-standard","hentry","category-actualites"],"_links":{"self":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/3697","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/comments?post=3697"}],"version-history":[{"count":0,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/3697\/revisions"}],"wp:attachment":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/media?parent=3697"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/categories?post=3697"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/tags?post=3697"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}