{"id":462,"date":"2021-11-28T12:19:27","date_gmt":"2021-11-28T11:19:27","guid":{"rendered":"https:\/\/cerenef.org\/?page_id=462"},"modified":"2025-11-27T16:12:25","modified_gmt":"2025-11-27T15:12:25","slug":"rcp-nf1","status":"publish","type":"post","link":"https:\/\/cerenef.org\/en\/rcp-nf1\/","title":{"rendered":"Hospital professionals"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"462\" class=\"elementor elementor-462\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2dcc72c3 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2dcc72c3\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-74cf87e8\" data-id=\"74cf87e8\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-482dd000 elementor-widget elementor-widget-text-editor\" data-id=\"482dd000\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The national Multidisciplinary Consultation Meeting (R\u00e9union de Concertation Pluridisciplinaire, RCP) provides an opportunity to discuss the management of complex patients with neurofibromatosis type 1 (NF1) among health professionals throughout the national territory (metropolitan France and overseas). Its main mission is to offer each patient with individualised care in terms of diagnostics and therapy.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2978dee elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2978dee\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-9d31de4\" data-id=\"9d31de4\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-28eaff3 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"28eaff3\" data-element_type=\"widget\" data-e-type=\"widget\" id=\"professionnels-vector-visuel\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInLeft&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2021\/12\/RCP-hospitalier.svg\" title=\"Referral Centre for Neurofibromatosis France\" alt=\"CERENEF - CEntre de Ref\u00e9rence des NEurofibromatoses France\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-e56342f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"e56342f\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5edfc23\" data-id=\"5edfc23\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3db7e2d elementor-widget elementor-widget-heading\" data-id=\"3db7e2d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">I am a hospital professional, and I would like to introduce a patient at the national RCP.\n<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-511c6a9 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"511c6a9\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3e1637e\" data-id=\"3e1637e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1fa0404 elementor-widget elementor-widget-toggle\" data-id=\"1fa0404\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"toggle.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-toggle\">\n\t\t\t\t\t\t\t<div class=\"elementor-toggle-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-3311\" class=\"elementor-tab-title\" data-tab=\"1\" role=\"button\" aria-controls=\"elementor-tab-content-3311\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon elementor-toggle-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-closed\"><i class=\"fas fa-caret-right\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-opened\"><i class=\"elementor-toggle-icon-opened fas fa-caret-up\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-toggle-title\" tabindex=\"0\">Next NF1 RCP sessions<\/a>\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div id=\"elementor-tab-content-3311\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"1\" role=\"region\" aria-labelledby=\"elementor-tab-title-3311\"><p><strong>Coordination<\/strong><br \/>Dr Laura Fertitta \u2013 E-mail : laura.fertitta@aphp.fr<br \/>and R\u00e9becca GENE \u2013 E-mail : rebecca.gene@aphp.fr<\/p><p><strong>Opening hours<\/strong><br \/>De 18h00 \u00e0 19h30.<\/p><p><strong>Dates 2026<\/strong><br \/>Les lundis 19 janvier, 16 f\u00e9vrier, 16 mars, 20 avril, 11 mai et 15 juin.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-toggle-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-3312\" class=\"elementor-tab-title\" data-tab=\"2\" role=\"button\" aria-controls=\"elementor-tab-content-3312\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon elementor-toggle-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-closed\"><i class=\"fas fa-caret-right\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-opened\"><i class=\"elementor-toggle-icon-opened fas fa-caret-up\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-toggle-title\" tabindex=\"0\">Registration and participation in the NF1 RCP<\/a>\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div id=\"elementor-tab-content-3312\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"2\" role=\"region\" aria-labelledby=\"elementor-tab-title-3312\"><p>Physicians (prescribers and participants) who wish to introduce a patient and\/or attend the NF1 RCP must create an account:<\/p><ul><li>Sur le portail \u00ab Skemeet \u00bb \u00e0 partir <a href=\"https:\/\/staff.skemeet.io\/fimarad-rcp-neurofibromatoses-type1\/nouveau-patient\">the specific link<\/a> for NF1 RCPs.<\/li><li>On the FIMARAD portal from <a href=\"https:\/\/fimarad.skemeet.io\/portail\/fimarad\" target=\"_blank\" rel=\"noopener\">des 7 RCP<\/a> available in the sector.<\/li><\/ul><p>Once the account is created, the doctor is then able to:<\/p><ul><li>Introduce a patient by filling in their information sheet in the RCP software and uploading all the documents necessary for their case.<\/li><li>Join the session (with or without the patient) using <a href=\"https:\/\/staff.skemeet.io\/fimarad-rcp-neurofibromatoses-type1\/nouveau-patient\" target=\"_blank\" rel=\"noopener\">the specific link<\/a> to the NF1 RCP by clicking on \"Participate in the staff\".<\/li><\/ul><p>Pour des raisons de s\u00e9curit\u00e9 des donn\u00e9es des patients, l\u2019envoi des fiches de RCP par e-mail n&rsquo;est plus possible. Le m\u00e9decin remplit et doit donc remplir directement la fiche de son patient en ligne.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-toggle-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-3313\" class=\"elementor-tab-title\" data-tab=\"3\" role=\"button\" aria-controls=\"elementor-tab-content-3313\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon elementor-toggle-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-closed\"><i class=\"fas fa-caret-right\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-opened\"><i class=\"elementor-toggle-icon-opened fas fa-caret-up\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-toggle-title\" tabindex=\"0\">Imagery<\/a>\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div id=\"elementor-tab-content-3313\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"3\" role=\"region\" aria-labelledby=\"elementor-tab-title-3313\"><p>For any surgical opinion or opinion concerning the introduction of a drug, it is essential to send the images either:\u00a0<\/p><ul type=\"disc\"><li class=\"ox-51dad4c070-MsoListParagraph\">Via ORTIF, sur le PACS de l\u2019h\u00f4pital Henri-Mondor (AP-HP).<\/li><li class=\"ox-51dad4c070-MsoListParagraph\">Available for download in DICOM format directly on the Skemeet platform.<\/li><li class=\"ox-51dad4c070-MsoListParagraph\">By post to: Henri-Mondor Hospital (AP-HP), Dermatology Department, Dr. Laura Fertitta, 1 rue Gustave Eiffel, 94000 Cr\u00e9teil.<\/li><\/ul><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-toggle-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-3314\" class=\"elementor-tab-title\" data-tab=\"4\" role=\"button\" aria-controls=\"elementor-tab-content-3314\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon elementor-toggle-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-closed\"><i class=\"fas fa-caret-right\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-opened\"><i class=\"elementor-toggle-icon-opened fas fa-caret-up\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-toggle-title\" tabindex=\"0\">Compatible browsers<\/a>\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div id=\"elementor-tab-content-3314\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"4\" role=\"region\" aria-labelledby=\"elementor-tab-title-3314\"><p>NF1 multidisciplinary team meetings are held via web conference, using a tool developed and adapted by Skemeet for rare disease multidisciplinary team meetings. All regulatory requirements concerning personal health data are complied with.<\/p><p>Download the latest version of browsers compatible with the RCP portal:<\/p><ul><li><a href=\"https:\/\/www.google.com\/intl\/fr_fr\/chrome\/\" target=\"_blank\" rel=\"noopener\">Chrome<\/a><\/li><li><a href=\"https:\/\/www.mozilla.org\/fr\/firefox\/new\/\" target=\"_blank\" rel=\"noopener\">Firefox<\/a><\/li><li><a href=\"https:\/\/www.microsoft.com\/fr-fr\/edge\" target=\"_blank\" rel=\"noopener\">Microsoft Edge<\/a><\/li><li><a href=\"https:\/\/support.apple.com\/fr_FR\/downloads\/safari\" target=\"_blank\" rel=\"noopener\">Safari<\/a><\/li><\/ul><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f1ecf06 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"f1ecf06\" data-element_type=\"section\" data-e-type=\"section\" id=\"share-confrere\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-a4d667c\" data-id=\"a4d667c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-29f0109 elementor-align-center elementor-widget elementor-widget-button\" data-id=\"29f0109\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/fimarad.skemeet.io\/portail\/fimarad\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-external-link-alt\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">FIMARAD RCP<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-d9186bd\" data-id=\"d9186bd\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7ae5e92 elementor-align-center elementor-widget elementor-widget-button\" data-id=\"7ae5e92\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/staff.skemeet.io\/fimarad-rcp-neurofibromatoses-type1\/nouveau-patient\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-external-link-alt\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">NF1 RCP<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>La R\u00e9union de Concertation Pluridisciplinaire (RCP) nationale permet de discuter de la prise en charge de patients complexes atteints de neurofibromatose de type 1 (NF1) entre professionnels de sant\u00e9, sur tout le territoire national (m\u00e9tropole et Outre-mer). Elle a pour principale mission de proposer pour chaque patient une prise en charge individualis\u00e9e tant diagnostique que&hellip;&nbsp;<\/p>\n<div class=\"read-more-wrapper\"><a href=\"https:\/\/cerenef.org\/en\/rcp-nf1\/\" class=\"button button-secondary\" rel=\"bookmark\">\u279c Read more<span class=\"screen-reader-text\">Hospital professionals<\/span><\/a><\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"neve_meta_sidebar":"","neve_meta_container":"","neve_meta_enable_content_width":"off","neve_meta_content_width":100,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":"","neve_meta_reading_time":"","footnotes":""},"categories":[11],"tags":[],"class_list":["post-462","post","type-post","status-publish","format-standard","hentry","category-prendre-en-charge-un-patient-avec-une-nf1"],"_links":{"self":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/462","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/comments?post=462"}],"version-history":[{"count":27,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/462\/revisions"}],"predecessor-version":[{"id":4209,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/462\/revisions\/4209"}],"wp:attachment":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/media?parent=462"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/categories?post=462"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/tags?post=462"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}