{"id":549,"date":"2021-11-28T15:21:04","date_gmt":"2021-11-28T14:21:04","guid":{"rendered":"https:\/\/cerenef.org\/?page_id=549"},"modified":"2023-12-07T13:06:24","modified_gmt":"2023-12-07T12:06:24","slug":"presentation-centre-neurofibromatoses","status":"publish","type":"post","link":"https:\/\/cerenef.org\/en\/presentation-centre-neurofibromatoses\/","title":{"rendered":"Presentation of CERENEF"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"549\" class=\"elementor elementor-549\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f404fa9 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"f404fa9\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-cd3fdd9\" data-id=\"cd3fdd9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2fbb41d elementor-invisible elementor-widget elementor-widget-image\" data-id=\"2fbb41d\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInLeft&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2022\/01\/hopital-presentation-1.svg\" title=\"CERENEF\" alt=\"CERENEF\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-371a034\" data-id=\"371a034\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0359e49 elementor-widget elementor-widget-spacer\" data-id=\"0359e49\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ef25a62 elementor-widget elementor-widget-text-editor\" data-id=\"ef25a62\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The Referral Centre for Neurofibromatosis France, \"CEntre de REf\u00e9rence des Neurofibromatoses France\" (CERENEF), is comprised of the following 3 sites:<\/p><ul><li>A coordination site at the Henri-Mondor Hospital (Cr\u00e9teil) dedicated to patients with neurofibromatosis type 1.<\/li><li>A constituent site dedicated to neurofibromatosistype 1 (Lyon) led by Dr Mona Amini-Adle (onco-dermatologist of the L\u00e9on B\u00e9rard cancer centre).<\/li><li>A constituent site dedicated to patients with type 2 neurofibromatosis directed by Professor Michel Kalamarides (neurosurgeon, Piti\u00e9-Salp\u00eatri\u00e8re group, Paris).<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-acf7daf elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"acf7daf\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-e0fe1b9\" data-id=\"e0fe1b9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b3717a3 elementor-widget elementor-widget-text-editor\" data-id=\"b3717a3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The paediatric management of neurofibromatosis type 1 in \u00cele-de-France is grouped into three competence centres:<\/p><ul><li>The site of the Trousseau Hospital (Paris) directed by Professor Diana Rodriguez (paediatric neurologist).<\/li><li>The site of the \"Necker-Enfants Malades\" Hospital (Paris) directed by Professor Sma\u00efl Hadj-Rabia (dermatologist).<\/li><li>This offer is complemented by another competence centre located near the coordinating site, the paediatrics department of the Intercommunal Hospital Centre Cr\u00e9teil (Centre HospitalierIntercommunal de Cr\u00e9teil [CHIC]) led by Professor Ralph Epaud with the creation of a dermatology branch linkedto the coordinating centre.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-02bfec3\" data-id=\"02bfec3\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-301e528 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"301e528\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInRight&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2022\/01\/hopital-presentation-2.svg\" title=\"CERENEF\" alt=\"CERENEF\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-8ff2b8c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"8ff2b8c\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-460ca27\" data-id=\"460ca27\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-541e1f5 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"541e1f5\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInLeft&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2022\/01\/hopital-presentation-3.svg\" title=\"CERENEF\" alt=\"CERENEF\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-4b11fcc\" data-id=\"4b11fcc\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a62ca66 elementor-widget elementor-widget-text-editor\" data-id=\"a62ca66\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>In addition, CERENEF has added the following specific competences:<\/p><ul><li>The plastic surgery department of the Georges Pompidou European Hospital (Paris) of Professor Laurent Lantieri (competence centre).<\/li><li>The neurosurgery department of the Beaujon Hospital (Clichy) of Professor Philippe Decq (competence centre).<\/li><li>The paediatric neurology department of the Kremlin-Bic\u00eatre Hospital of Professor Patrick Aubourg.<\/li><li>The onco-paediatrics department of the Curie Institute (Paris), referent: Pr. Fran\u00e7ois Doz.<\/li><li>The onco-paediatrics department of the Gustave Roussy Institute (Villejuif), referent: Dr Jack Grill.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-33787d9 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"33787d9\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-144ebee\" data-id=\"144ebee\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-18aae4d elementor-widget elementor-widget-text-editor\" data-id=\"18aae4d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Each constituent site can organise multidisciplinary care in consultation, day hospitalisation, or traditional hospitalisation.<\/p><p>The relay outside \u00cele-de-France is provided by a network of competence centres (ie, NF-France) within each main French region: there are 22 competence centres covering the needs of the management of both type 1and type 2 neurofibromatosis. An overseas competence centrein Fort de France (Martinique) has been opened.<\/p><p>In addition, CERENEF is linked to the molecular biology laboratory of the Cochin Hospital (Paris) for the molecular antenatal diagnostics of neurofibromatosis (Pr. Michel Vidaud) and with the various French Pre Implantation Diagnostic Centres (PID).<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a0e0f02\" data-id=\"a0e0f02\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1ba4b97 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"1ba4b97\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInRight&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2022\/01\/hopital-presentation-4.svg\" title=\"CERENEF\" alt=\"CERENEF\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Le CEntre de REf\u00e9rence des Neurofibromatoses France, CERENEF, est constitu\u00e9 des 3 sites suivants : Un site coordonnateur, celui de l&rsquo;h\u00f4pital Henri-Mondor (Cr\u00e9teil), d\u00e9di\u00e9 aux patients adultes atteints de neurofibromatose 1. Un site constitutif d\u00e9di\u00e9 \u00e0 la neurofibromatose 1 (Lyon) dirig\u00e9 par le Dr Mona Amini-Adle (onco-dermatologie du centre de lutte contre le cancer L\u00e9on&hellip;&nbsp;<\/p>\n<div class=\"read-more-wrapper\"><a href=\"https:\/\/cerenef.org\/en\/presentation-centre-neurofibromatoses\/\" class=\"button button-secondary\" rel=\"bookmark\">\u279c Read more<span class=\"screen-reader-text\">Presentation of CERENEF<\/span><\/a><\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"neve_meta_sidebar":"","neve_meta_container":"","neve_meta_enable_content_width":"off","neve_meta_content_width":100,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":"","neve_meta_reading_time":"","footnotes":""},"categories":[16],"tags":[],"class_list":["post-549","post","type-post","status-publish","format-standard","hentry","category-le-cerenef"],"_links":{"self":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/549","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/comments?post=549"}],"version-history":[{"count":0,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/549\/revisions"}],"wp:attachment":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/media?parent=549"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/categories?post=549"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/tags?post=549"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}