{"id":573,"date":"2021-11-28T17:09:26","date_gmt":"2021-11-28T16:09:26","guid":{"rendered":"https:\/\/cerenef.org\/?page_id=573"},"modified":"2023-12-07T13:06:23","modified_gmt":"2023-12-07T12:06:23","slug":"missions-centre-neurofibromatoses","status":"publish","type":"post","link":"https:\/\/cerenef.org\/en\/missions-centre-neurofibromatoses\/","title":{"rendered":"Missions"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"573\" class=\"elementor elementor-573\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-56c80cc elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"56c80cc\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-0c41bb0\" data-id=\"0c41bb0\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-29204d9 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"29204d9\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInLeft&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2022\/01\/missions-neurofibromatoses.svg\" title=\"CERENEF\" alt=\"CERENEF\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-6d51b55\" data-id=\"6d51b55\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a59976c elementor-widget elementor-widget-text-editor\" data-id=\"a59976c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The Referral Centre for Neurofibromatosis France (CERENEF) focuses on five missions: care, genetic counselling, research, education, and training.<\/p><p>The target pathologies are neurofibromatosis (type 1 and 2), schwannomatosis, Legius syndrome, and mosaic forms.<\/p><p>As part of the <a href=\"https:\/\/fimarad.org\" target=\"_blank\" rel=\"noopener\">FIMARAD care network,<\/a> the centre is committed to manage patients with orphan pathologies who are not assigned to a specific referralcentre if the competences are developed locally. Within the FIMARAD network, the exchange of experience and the sharing of knowledge between centresare key.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b7e6578 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b7e6578\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-7371f5b\" data-id=\"7371f5b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0eea759 elementor-widget elementor-widget-text-editor\" data-id=\"0eea759\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Regarding research, the referralcentre has developed projects in the following areas:<\/p><section data-id=\"1f1fda37\" data-element_type=\"section\"><div><div data-id=\"70c9f5ef\" data-element_type=\"column\"><div><div data-id=\"5ee11a3a\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\"><div><ul><li>Therapeutic trials: Pierre Wolkenstein (Henri-Mondor Hospital) and Michel Kalamarides (Piti\u00e9-Salp\u00eatri\u00e8re Hospital).<\/li><li>Surgical techniques: Michel Kalamarides, Laurent Lantieri (Georges Pompidou European Hospital) and Philippe Decq (Beaujon Hospital).<\/li><li>Animal models: Pierre Wolkenstein, Piotr Topilko (Henri-Mondor Hospital), Michel Kalamarides and Marcello Giovannini (San Paolo Hospital, Milan).<\/li><li>Molecular biology: Beno\u00eet Funalot from the Genetics Department (Henri-Mondor Hospital) as well as Michel Vidaud, \u00c9ric Pasmant, and Dominique Vidaud from the Cochin Institute, Inserm team (genomics and epigenetics of rare tumours).<\/li><li>Clinical epidemiology: Pierre Wolkenstein and \u00c9milie Sbidian (Henri-Mondor Hospital).<\/li><\/ul><\/div><\/div><\/div><\/div><\/div><\/section>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-fcf21cf\" data-id=\"fcf21cf\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a1abf92 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"a1abf92\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInRight&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2022\/01\/projets-neurofibromatoses.svg\" title=\"CERENEF\" alt=\"CERENEF\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-025c01f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"025c01f\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-00692d8\" data-id=\"00692d8\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bd4a859 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"bd4a859\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInLeft&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/cerenef.org\/wp-content\/uploads\/2022\/01\/transmission-centre-neurofibromatoses.svg\" title=\"CERENEF\" alt=\"CERENEF\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-035c5f1\" data-id=\"035c5f1\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a59fcd3 elementor-widget elementor-widget-text-editor\" data-id=\"a59fcd3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The educational mission is directed towards patients and <a href=\"https:\/\/cerenef.org\/en\/associations-de-patients-neurofibromatoses\/\">their associations<\/a>, especially in the therapeutic field. The implementation of <a href=\"https:\/\/cerenef.org\/en\/education-therapeutique-neurofibromatoses\/\">Therapeutic Patient Education (TPE) Program<\/a> dedicated to neurofibromatosis type 1 contributes to this mission.<\/p><p>The training mission is addressed to both healthcare and social professionals and aims to improve the knowledge of the diseases that are followed in the centre.<\/p><p>Tele-expertise and tele-consultation services (Camille Hua, Pierre Wolkenstein) have also been developed.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Le CERENEF d\u00e9veloppe cinq missions : le soin, le conseil g\u00e9n\u00e9tique, la recherche, l&rsquo;\u00e9ducation et l&rsquo;enseignement. Les pathologies cibles sont : les neurofibromatoses (de type 1 et 2), les schwannomatoses, le syndrome de Legius et les formes mosa\u00efques. Dans le cadre de la charte de la fili\u00e8re de soins FIMARAD, le centre s&rsquo;est engag\u00e9 \u00e0&hellip;&nbsp;<\/p>\n<div class=\"read-more-wrapper\"><a href=\"https:\/\/cerenef.org\/en\/missions-centre-neurofibromatoses\/\" class=\"button button-secondary\" rel=\"bookmark\">\u279c Read more<span class=\"screen-reader-text\">Missions<\/span><\/a><\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"neve_meta_sidebar":"","neve_meta_container":"","neve_meta_enable_content_width":"off","neve_meta_content_width":100,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":"","neve_meta_reading_time":"","footnotes":""},"categories":[16],"tags":[],"class_list":["post-573","post","type-post","status-publish","format-standard","hentry","category-le-cerenef"],"_links":{"self":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/573","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/comments?post=573"}],"version-history":[{"count":0,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/posts\/573\/revisions"}],"wp:attachment":[{"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/media?parent=573"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/categories?post=573"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cerenef.org\/en\/wp-json\/wp\/v2\/tags?post=573"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}