On this page, we provide information on the neurofibromatosis competence centres that exclusively manage children. The information is intended to be as complete as possible but may differ from one centre to another due to the specificity of their mode of operation.
Brest
Dermatology department
Paediatrics and genetics department
2 avenue Foch
29200 Brest - France
Administrative office
Tel.: +33 (2) 98 22 34 77
Fax: +33 (2) 98 22 34 94
E-mail: dermatologie@chu-brest.fr
Consultations
One Thursday per month in the Genetics department on the 4tth floor of building 5 of the Morvan Hospital
Type of patients
Children
Head of the dermatology department
Pr. Laurent Misery - Dermatology
Head of the paediatric genetics department
Pr. Loïc De Parscau - Paediatrics
Referring physician
Dr. Claire Abasq – Dermatology
Neurofibromatosis type 1
Schwannomatosis
Supported neurofibromas
Dermatological surgery
Laser C02
Créteil
Paediatrics department
40 avenue de Verdun
94010 Créteil Cedex - France
Administrative office
Tel.: +33 (1) 57 02 26 45 or +33 (1) 57 02 26 46
Type of patients
Children
Head of department and referring physician
Pr. Ralph Epaud – Paediatrics
Neurofibromatosis type 1
Schwannomatosis
Marseille
Specialised paediatrics department and paediatric units (neurology, pulmonology, hereditary metabolic diseases)
264 rue Saint-Pierre
13385 Marseille Cedex 20 - France
Consultations
Tel.: +33 (4) 91 38 68 08
Administrative office
Tel.: +33 (4) 91 38 68 07
Fax: +33 (4) 91 38 67 22
E-mail: rdv-neuropediatrie.timoneenfants@ap-hm.fr
Type of patients
Children
Head of Department
Pr. Brigitte Chabrol - Paediatrics
Referring physician
Dr. Frédérique Audic - Neuropediatrics
Neurofibromatosis type 1
Neurofibromatosis type 2
Supported neurofibromas
Laser C02
Paris
Neuro-paediatric department
26 avenue du Docteur Arnold-Netter
75012 Paris - France
Administrative office
Tel.: +33 (1) 44 73 61 41 or +33 (1) 44 73 65 75
Fax: +33 (1) 44 73 69 64
E-mail: secretariat.neurobillette@aphp.fr
Type of patients
Children
Head of Department
Pr. Thierry Billette De Villeneur - Pediatrics
Referring physician
Dr. Frédérique Audic - Pediatrics
Neurofibromatosis type 1
Dermatology department
149 rue de Sèvres
75743 Paris Cedex 15 - France
Administrative office
First appointment - Tel.: +33 (1) 44 49 46 68
Follow-up - Tel.: +33 (1) 44 49 43 37
Fax: +33 (1) 44 49 44 71
E-mail: dermatologie.rdv@nck.aphp.fr
Type of patients
Children
Head of Department
Pr. Christine Bodemer – Dermatology
Referring physician
Pr. Smail Hadj-Rabia – Dermatology
Neurofibromatosis type 1
Genetics department
Clinical Genetics Functional Unit – Bingen Building
48 boulevard Sérurier
75019 Paris - France
Administrative office
Tel.: +33 (1) 40 03 53 06
Fax: +33 (1) 40 03 22 77
E-mail: genetique.clinique.rdb@aphp.fr
Type of patients
Children
Head of Department
Pr. Alain Verloes - Genetics
Referring physician
Dr. Sandrine Passemard – Genetics
Neurofibromatosis type 1
Legius syndrome
Rouen
Paediatric haemato-immuno-oncology department
1 rue de Germont
76031 Rouen Cedex - France
Administrative office
Tel.: +33 (2) 32 88 80 54 (Patricia Poulain)
Fax: +33 (2) 32 88 88 55
E-mail: patricia.poulain@chu-rouen.fr
Type of patients
Children
Referring physician
Dr. Bruno Filhon - Paediatrics
Neurofibromatosis type 1
Neurofibromatosis type 2
Toulouse
Paediatric Neurology Unit
330 avenue de Grande Bretagne
31059 Toulouse Cedex 9 - France
Administrative office
Tel.: +33 (5) 34 55 85 75 (Danièle Santamaria)
Fax: +33 (5) 34 55 87 10
E-mail: santamaria.d@chu-toulouse.fr
Type of patients
Children
Head of department and referring physician
Pr. Yves Chaix – Neurology and paediatrics
Neurofibromatosis type 1
Neurofibromatosis type 2
Supported neurofibromas
Dermatological surgery
Laser C02
Tours
Neuro-paediatric and handicaps department
49 boulevard Béranger
37044 Tours Cedex 9 - France
Administrative office
Tel.: +33 (2) 47 47 47 57
Fax: +33 (2) 47 47 82 50
Type of patients
Children
Head of department and referring physician
Pr. Pierre Thomas Castelnau - Neurology and paediatrics
Neurofibromatosis type 1
Neurofibromatosis type 2
Saint-Pierre (Reunion Island)
Paediatric dermatology department
Avenue François Mitterrand
BP 350
97448 Saint-Pierre Cedex - France
Administrative office
Tel.: +33 (2) 2 35 91 61
Type of patients
Children
Head of department and referring physician
Dr. Juliette Miquel - Paediatrics
Neurofibromatosis type 1
Neurofibromatosis type 2
Supported neurofibromas
Dermatological surgery
Other paediatric sites managing NF1
The following sites are also involved in paediatric management of children with neurofibromatosis type 1, in Grenoble and the Paris region.
Paediatrics department
CS10217
38043 Grenoble cedex 09 - France
Administrative office
Tel.: +33 (4) 76 76 59 11
E-mail: secretariatoncopediatrie@chu-grenoble.fr
Referring physician
Dr. Marie Bru – Neuropaediatrics
Médecin associé
Dr. Mathilde Tardieu – Dermatology (children and adults)
Supported neurofibromatosis
Neurofibromatosis type 1
Type of patients
Children (0-20 years)
Neuro-paediatric department
78 rue du Général Leclerc
94270 Le Kremlin-Bicêtre - France
Administrative office
Tel.: +33 (1) 45 21 31 32
Referring physician
Pr. Patrick Aubourg - Paediatrics
Supported neurofibromatosis
Neurofibromatosis type 1
Type of patients
Children
Paediatrics department
26 rue d’Ulm
75248 Paris cedex 05 - France
Administrative office
Tel.: +33 (1) 44 32 46 01
Referring physician
Dr. Isabelle Aerts – Paediatrics
Supported neurofibromatosis
Neurofibromatosis type 1
Type of patients
Children
Paediatrics department
114 rue Édouard Vaillant
94805 Villejuif - France
Administrative office
Tel.: +33 (1) 42 11 60 56
E-mail: dpt.enfantado@gustaveroussy.fr
Referring physician
Dr. Jacques Grill - Research doctor
Supported neurofibromatosis
Neurofibromatosis type 1
Type of patients
Children