On this page, we provide information on the neurofibromatosis competence centres that exclusively manage children. The information is intended to be as complete as possible but may differ from one centre to another due to the specificity of their mode of operation.
Besançon
Dermatology department
3 boulevard Alexandre Fleming
25030 Besançon
Administrative office
Tel.: +33 (3) 21 66 81 66
Fax: +33 (3) 81 21 87 92
Head of Department
Dr Emmanuel Plouvier
Referring physician
Dr Eve Puzenat – Dermatologie
Neurofibromatose de type 1 et syndromes apparentés
Rasopathies
Children
Paris
Neuro-paediatric department
26 avenue du Docteur Arnold-Netter
75012 Paris - France
Administrative office
Tél : 01 44 73 61 41 – 01 44 73 65 75
Fax: +33 (1) 44 73 69 64
E-mail: secretariat.neurobillette@aphp.fr
Head of Department
Pr Thierry Billette De Villeneur
Referring physician
Dr Diana Rodriguez – Neuropédiatrie
Médecin associé
Mme Virginie Coutinho – Neuro-psychologue
Dr Isabelle Kemlin – Neuropédiatrie
Mr Naji Teraa – Assistant social
Neurofibromatose de type 1 et 2 et syndromes apparentés
Syndromes apparentés aux neurofibromatoses
Legius syndrome
Children
Other paediatric sites managing NF1
The following sites are also involved in paediatric management of children with neurofibromatosis type 1, in Grenoble and the Paris region.
Paediatrics department
CS10217
38043 Grenoble cedex 09 - France
Administrative office
Tel.: +33 (4) 76 76 59 11
E-mail: secretariatoncopediatrie@chu-grenoble.fr
Referring physician
Dr. Marie Bru – Neuropaediatrics
Médecin associé
Dr. Mathilde Tardieu – Dermatology (children and adults)
Supported neurofibromatosis
Neurofibromatosis type 1
Type of patients
Children (0-20 years)
Neuro-paediatric department
78 rue du Général Leclerc
94270 Le Kremlin-Bicêtre - France
Administrative office
Tel.: +33 (1) 45 21 31 32
Referring physician
Pr. Patrick Aubourg - Paediatrics
Supported neurofibromatosis
Neurofibromatosis type 1
Type of patients
Children
Paediatrics department
26 rue d’Ulm
75248 Paris cedex 05 - France
Administrative office
Tel.: +33 (1) 44 32 46 01
Referring physician
Dr. Isabelle Aerts – Paediatrics
Supported neurofibromatosis
Neurofibromatosis type 1
Type of patients
Children
Paediatrics department
114 rue Édouard Vaillant
94805 Villejuif - France
Administrative office
Tel.: +33 (1) 42 11 60 56
E-mail: dpt.enfantado@gustaveroussy.fr
Referring physician
Dr. Jacques Grill - Research doctor
Supported neurofibromatosis
Neurofibromatosis type 1
Type of patients
Children