The national Multidisciplinary Consultation Meeting (Réunion de Concertation Pluridisciplinaire, RCP) provides an opportunity to discuss the management of complex patients with neurofibromatosis type 1 (NF1) among health professionals throughout the national territory (metropolitan France and overseas). Its main mission is to offer each patient with individualised care in terms of diagnostics and therapy.
I am a hospital professional, and I would like to introduce a patient at the national RCP.
Coordination
Dr Laura Fertitta – E-mail : laura.fertitta@aphp.fr
and Rébecca GENE – E-mail : rebecca.gene@aphp.fr
Opening hours
From 2 pm to 3:30 pm.
Dates (2024)
Les jeudis : 29 février, 21 mars.
Physicians (prescribers and participants) who wish to introduce a patient and/or attend the NF1 RCP must create an account:
- Sur le portail « Skemeet » à partir the specific link for NF1 RCPs.
- On the FIMARAD portal from the 6 RCPs available in the sector.
Once the account is created, the doctor is then able to:
- Introduce a patient by filling in their information sheet in the RCP software and uploading all the documents necessary for their case.
- Join the session (with or without the patient) using the specific link to the NF1 RCP by clicking on "Participate in the staff".
For patient data security reasons, sending RCP sheets by e-mail is no longer possible. The physician must therefore fill out the patient's form directly online.
Les RCP NF1 ont lieu en web-conférence, grâce à un outil développé et adapté par « Skemeet » pour les RCP maladies rares. Toutes les exigences réglementaires concernant les données de santé nominatives sont respectées.
Download the latest version of browsers compatible with the RCP portal: