In France
- Social Welfare of Paris Hospitals (Assistance Publique des Hôpitaux Parisiens, AP-HP)
- College of Teachers in Dermatology of France (Collège des Enseignants en Dermatologie de France, CEDEF)
- Epidemiology in Dermatology and Evaluation of therapeutics (EpiDermE)
- Rare dermatologic diseases branch (FIlière santé Maladies RAres Dermatologiques, FIMARAD)
- Henri-Mondor University Hospitals
- Orphanet - The Rare Diseases and Orphan Drugs Portal
- French Society of Dermatology (Société Française de Dermatology, SFD)
- Paris-East Créteil University (Université Paris-Est Créteil, UPEC)
In Europe
- ERN GENTURIS network
- ERN-Skin
- European Neurofibromatosis Group (ENFG)
In the rest of the world
