On this page, we provide information on the neurofibromatosis referral centres (coordinating and constituent sites) managing both children and adults. The information is intended to be as complete as possible but may differ from one centre to another due to the specificity of their mode of operation.
Créteil
As a coordinating site, the Henri-Mondor Hospital site coordinates the following five missions of CERENEF within the NF-France network:
- Patient care.
- Genetic counselling.
- Research.
- Education.
- Training.
More specifically, patients with neurofibromatosis type 1 are admitted, monitored, and treated.
CERENEF - Referral Centre for Neurofibromatosis France
Coordinating site
Henri-Mondor Hospital
Dermatology department
1 rue Gustave Eiffel
94010 Créteil Cedex - France
Nurse coordinator
Sabine Moryousef – E-mail: sabine.moryousef@aphp.fr
Tel.: +33 (1) 49 81 44 61
Fax: +33 (1) 49 81 37 97
Administrative office of the dermatology department
Christine Lescure – E-mail: christine.lescure@aphp.fr
Alexandra Vo – E-mail: alexandra.vo@aphp.fr
Tel.: +33 (1) 49 81 25 01
Fax: +33 (1) 49 81 25 08
Type of patients
Adults
Head of the dermatology department and referring physician
Pr. Pierre Wolkenstein - Dermatology
Head of the pathology department
Pr. Nicolas Ortonne - Dermato-pathology
Associated doctors
Pr. Khaled Ezzedine – Dermatology
Dr. Christina Bergqvist – Dermatology
Dr. Marouane Ben-Kahla – Dermatology
Dr. Salah Ferkal - Rheumatology
Dr. Laura Fertitta – Dermatology
Dr. Arnaud Jannic - Onco-dermatology
Dr. Jean-Christophe Moreno – Dermatology
Dr. Ouidad Zehou – Onco-dermatology
Nurse coordinator
Sabine Moryousef - State-certified nurse
Research Nurse
Audrey Colin - State-certified nurse
Social worker
Joséphine Redlich
Tel.: +33 (1) 49 81 25 22 (follow-up of patients within the department by appointment, from Monday to Friday, from 9 am to 5 pm)
Dermatology department assistant
Christine Lescure
Alexandra Vo
Head of the medical genetics department
Pr. Benoît Funalot - Genetics
Dr. Ariane Lunatti-Rozie - Genetics
Medical genetics consultant
Bérénice Hebrard - State-certified nurse
Genetics department assistant
Pascale Ringot
Tel.: +33 (1) 49 81 28 61
E-mail: pascale.ringot@aphp.fr
Neurofibromatosis type 1
Neurofibromatosis type 2
Schwannomatosis
Legius syndrome
Lyon
Constitutive site
Onco-dermatology unit
CSA consultation (3th floor)
28 rue Laennec
69008 Lyon - France
Administrative office
Tel.: +33 (4) 78 78 59 96 (Cécile Morin)
Fax: +33 (4) 78 78 27 16
E-mail: cecile.morin@lyon.unicancer.fr
Type of patients
Children and adults
Head of service
Dr. Patrick Combemale – Onco-dermatology
Referring physician
Dr. Mona Amini-Adle – Onco-dermatology
Neurofibromatosis type 1
Legius syndrome
Supported neurofibromas
Dermatological surgery
Laser C02
Paris
Constitutive site
Neurosurgery department
47-83 boulevard de l’Hôpital
Bâtiment Paul Castaigne (1rst floor)
75651 Paris Cedex 13 - France
Administrative office
Tel.: +33 (1) 42 16 26 04 (Emmanuelle Feve)
Fax: +33 (1) 42 16 26 05
E-mail: emmanuelle.feve@aphp.fr
Type of patients
Children and adults
Head of service and referring physician
Pr. Kalamarides - Neurosurgery
Neurofibromatosis type 2
Peripheral schwannomas
Vestibular schwannomas