ENFG Day - Friday, April 04, 2025
On April 4, 2025, the ENFG Day brought together clinical experts, researchers, patients, and their representatives at the Maison de la Dermatologie in Paris. This event helped strengthen European ties and opened the door to future collaborations.
CERENEF Center Day - Friday, February 07, 2025
The coordinator, constitutive and competence centers in France gathered in Paris, at the Maison de la Dermatologie, on February 07 to address several issues of importance to CERENEF, such as the organization of the national RCP, the role of molecular analysis tools, the management of the main complications of children and adults with NF1, and more broadly the organization of care on a national level. Translated with DeepL.com (free version)
Rare Disease Day - Friday, February 28, 2025
International Rare Disease Day was held on Friday February 28, and ESMARA, the Grand Paris Est rare disease expertise platform, organized a dedicated day. CERENEF and the other centers in the platform took part, offering a unique opportunity for exchange and reflection on the theme of raising awareness of rare diseases, for patients, visitors and staff at Henri-Mondor Hospital (AP-HP). Photos: copyright © Direction de la communication Henri Mondor
