The Therapeutic Patient Education (TPE) is a practice whose development is growing exponentially. By giving a prominent place to patients as an actor in their health, it aims to "help patients acquire or maintain the skills they need to best manage their lives with a chronic disease" (WHO). It also makes it possible to integrate the family environment and the caregivers into this care and to strengthen their involvement.
In the dermatology department of the Henri-Mondor Hospital, we have implemented a TPE program for patients with neurofibromatosis type 1 (NF1), a program developed with the involvement of patients. Their active participation is crucial for the development of a didactic, innovative, and above all a useful program!
Our idea is to offer patients with NF1with a series of group workshops or individual consultations adapted to everyone. To do this, we need work closely with patients in order to better address their needs.
We obtained funding from the DGOS ("Direction Générale de l’Offre de Soins") to set up this program and obtained the agreement from the ARS ("Agence Régionale de Santé").
In addition to the workshops held at Henri-Mondor Hospital, the team has also developed a digital tool. This interactive online course is a fun and immersive 20-minute game that allows users to explore the key concepts of NF1 at their own pace, from the comfort of their own home. Finally, interactive online conferences, or webinars, are organized by the ETP CERENEF team.
Would you like more information about this TPE program?
General information
E-mail: etp.dermatologie.hmn@aphp.fr
TPE coordination – Audrey Colin, state-certified nurse
E-mail: audrey.colin@aphp.fr
Registrations – Alexandra Vo, dermatology department assistant
Tel.: +33 (1) 49 81 25 01 - Fax:+33 (1) 49 81 25 08 – E-mail: alexandra.vo@aphp.fr