On this page, we provide information on the neurofibromatosis competence centres that exclusively manage adults.
- Clichy – Beaujon Hospital
- Lille - Roger Salengro Hospital.
- Paris - European Georges Pompidou Hospital.
And also competence centres for children and adults in Amiens, Besançon, Bordeaux, Brest, Fort-de-France (Martinique), Lille, Lyon, Marseille, Montpellier, Nancy, Nantes, Rennes, Rouen, Saint-Pierre (La Réunion) and Strasbourg.
The information is intended to be as complete as possible but may differ from one centre to another due to the specificity of their mode of operation.
Adults only
Clichy
Department of Neurosurgery (8th floor)
100 avenue du général Leclerc
92110 Clichy - France
Administrative office
Tel.: +33 (1) 40 87 53 06 (Audrey Distribue)
Fax: +33 (1) 47 39 66 35
E-mail: audrey.distribue@aphp.fr
Type of patients
Adults
Head of department and referring physician
Pr. Philippe Decq - Neurosurgery
Neurofibromatosis type 1
Lille
Neurosurgery department
rue du Professeur Émile Laine
59037 Lille Cedex - France
Consultations
Tel.: +33 (3) 20 44 64 56
Hospitalizations
Tel.: +33 (3) 20 44 65 42
Type of patients
Adults
Head of Department
Pr. Jean-Paul Lejeune - Dermatology
Médecin référent du site
Dr. Rabih Aboukais - Neurosurgery
Neurofibromatosis type 2
Supported neurofibromas
Dermatological surgery
Laser C02
Paris
Plastic, reconstructive, and aesthetic surgery department
6th floor - Sector D 20
rue Leblanc
75015 Paris - France
Administrative office
Tel.: +33 (1) 56 09 58 72 (Mrs Jacquemet)
Plateforme prise de RDV
Tel.: +33 (1) 56 09 50 00
doctolib.fr
Type of patients
Adults
Head of department and referring physician
Pr. Laurent Lantieri - Plastic and aesthetic surgery
Neurofibromatosis type 1
Supported neurofibromas
Dermatological surgery
Laser C02
Children and adults
Amiens
Dermatology department
Place Victor Pauchet
80054 Amiens Cedex 1 - France
Consultations
Ground floor - Surgery 2 building
Tel.: +33 (3) 22 45 56 69
Fax: +33 (3) 22 45 60 72
E-mail: dermatologie@chu-amiens.fr
Hospitalizations
3th floor - Surgery 2 building
Tel.: +33 (3) 22 45 58 43 or +33 (3) 22 45 54 62
Tel.: +33 (3) 22 45 54 61
Type of patients
Children and adults
Head of Department
Pr. Catherine Lok – Angiology and onco-dermatology
Referring physician
Dr. Ali Dadban – Onco-dermatology
Neurofibromatosis type 1
Besançon
Dermatology department
3 boulevard Fleming
25000 Besançon - France
Administrative office
Tel.: +33 (3) 21 66 81 66
Fax: +33 (3) 81 21 87 92
Type of patients
Children and adults
Head of Department
Dr. Emmanuel Plouvier – Paediatrics and haematology-oncology
Referring physician
Dr. Éve Puzenat - Dermatology
Neurofibromatosis type 2
Supported neurofibromas
Dermatological surgery
Laser C02
Bordeaux
Neurology Department
A Tripode – 2th floor - Units 1 and 2
1 place Amélie Raba-Léon
33076 Bordeaux Cedex - France
Administrative office
Tel.: +33 (5) 56 79 55 43
Fax: +33 (5) 56 79 61 55
E-mail : sec-neurochir.a@chu-bordeaux.fr
Type of patients
Children and adults
Head of department and referring doctor of the site
Pr. Dominique Liguoro - Neurosurgery
Neurofibromatosis type 2
Supported neurofibromas
Dermatological surgery
Laser C02
Brest
Dermatology department
Paediatrics and genetics department
2 avenue Foch
29200 Brest - France
Administrative office
Tel.: +33 (2) 98 22 34 77
Fax: +33 (2) 98 22 34 94
E-mail: dermatologie@chu-brest.fr
Consultations
One Thursday per month in the Genetics department on the 4tth floor of building 5 of the Morvan Hospital
Type of patients
Children and adults
Head of the dermatology department
Pr. Laurent Misery - Dermatology
Head of the paediatric genetics department
Pr. Loïc De Parscau - Paediatrics
Referring physician
Dr. Fanny Morice-Picard - Dermatology and genetics
Neurofibromatosis type 1
Schwannomatosis
Supported neurofibromas
Dermatological surgery
Laser C02
Fort-de-France (Martinique)
Dermatology department
CS 90632
97261 Fort-de-France Cedex
Administrative office
Tel.: +33 (5) 96 55 22 64
Fax: +33 (5) 96 75 52 66
Type of patients
Children and adults
Head of the dermatology department
Dr. Rémi Bellance - Dermatology
Referring physician
Dr. Nicola Briand - Dermatology
Neurofibromatosis type 1
Neurofibromatosis type 2
Supported neurofibromas
Dermatological surgery
Laser C02
Lille
Dermatology department
rue Michel Plonovski
59037 Lille - France
Administrative office
Tel.: +33 (3) 20 44 48 68
Fax: +33 (3) 20 44 59 16
Type of patients
Children and adults
Head of department and referring doctor of the site
Pr. Laurent Mortier – Dermatology
Neurofibromatosis type 1
Supported neurofibromas
Dermatological surgery
Laser C02
Lyon
Neuro-oncology department
59 boulevard Pinel
69677 Bron Cedex - France
Administrative office
Tel.: +33 (4) 72 35 78 06
Type of patients
Children and adults
Head of the dermatology department
Pr. Jérôme Hommorat - Neuro-oncology
Referring physician
Pr. François Ducray - Neuro-oncology
Neurofibromatosis type 2
Schwannomatosis
Supported neurofibromas
Dermatological surgery
Laser C02
Marseille
Neurosurgery department
Pavilion Mistral (1rst floor)
264 rue Saint-Pierre
13385 Marseille Cedex 20 - France
Administrative office
Tel.: +33 (4) 91 96 86 20
Fax: +33 (4) 91 65 54 72
E-mail: secretariat.neurochirurgie.nord@ap-hm.fr
Type of patients
Children and adults
Head of department and centre’s referring physician
Pr. Pierre-Hugues Roche - Neurosurgery
Neurofibromatosis type 2
Supported neurofibromas
Laser C02
Montpellier
Dermatology department
80 avenue Augustin Fliche
34295 Montpellier Cedex 5 - France
Administrative office
Tel.: +33 (4) 67 33 69 06
Fax: +33 (4) 67 33 69 58
Type of patients
Children and adults
Head of Department
Pr. Olivier Dereure – Dermatology
Referring physician
Pr. Didier Bessis – Dermatology
Neurofibromatosis type 1
Neurofibromatosis type 2
Supported neurofibromas
Dermatological surgery
Laser C02
Nancy
Dermatology department
6 allée du Morvan
54500 Vandœuvre-les-Nancy - France
Administrative office
Tel.: +33 (3) 83 15 48 00 or +33 (3) 81 15 71 46
Fax: +33 (3) 83 15 70 11
E-mail: dermato@chru-nancy.fr
Type of patients
Children and adults
Head of Department
Pr. Jean-Luc Schmutz - Dermatology
Referring physician
Pr. Anne-Claire Bursztein - Dermatology
Neurofibromatosis type 1
Supported neurofibromas
Dermatological surgery
Laser C02
Nantes
Dermatology department
1 place Alexis-Ricordeau
44093 Nantes Cedex 1 - France
Administrative office
Tel.: +33 (2) 40 08 31 16
E-mail: secretariat.dermatologie@chu-nantes.fr
Type of patients
Children and adults
Head of Department
Pr. Brigitte Dreno – Dermatology
Referring physician
Pr. Sébastien Barbarot – Dermatology
Neurofibromatosis type 1
Neurofibromatosis type 2
Schwannomatosis
Bus
Lines 42, 52, 56 and C2
Tramway
Lines 1, 2, 3, "Hôtel-Dieu" and "Commerce" stop
Rennes
Dermatology department
rue Henri Le Guilloux
35000 Rennes - France
Administrative office
Tel.: +33 (2) 99 28 43 49
Fax: +33 (2) 99 28 41 00
Type of patients
Children and adults
Head of Department
Pr. Alain Dupuy – Dermatology
Referring physician
Dr. Henri Adamski – Dermatology
Neurofibromatosis type 1
Rouen
Dermatological clinic
Door 12 (1rst floor)
1 rue de Germont
76031 Rouen Cedex - France
Administrative office
Tel.: +33 (2) 32 88 80 54 (Patricia Poulain)
Fax: +33 (2) 32 88 88 55
E-mail: patricia.poulain@chu-rouen.fr
Type of patients
Children and adults
Head of department and referring physician
Pr. Pascal Joly – Dermatology
Neurofibromatosis type 1
Neurofibromatosis type 2
Saint-Pierre (Reunion Island)
Dermatology South Unit
Avenue François Mitterrand
BP 350
97448 Saint-Pierre Cedex - France
Administrative office
Tel.: +33 (2) 62 35 91 65
Type of patients
Children and adults
Head of department and referring physician
Dr. Antoine Bertolotti - Dermatology
Neurofibromatosis type 1
Neurofibromatosis type 2
Supported neurofibromas
Dermatological surgery
Strasbourg
Dermatology department
1 place de l’hôpital
BP 426
67091 Strasbourg Cedex - France
Administrative office
Tel.: +33 (3) 88 11 66 27
Fax: +33 (3) 88 11 59 62
Type of patients
Children and adults
Head of department and referring physician
Pr. Dan Lipsker – Dermatology
Neurofibromatosis type 1
Neurofibromatosis type 2
Schwannomatosis
Legius syndrome